More on the nausea, somehow since last week my insurance company decreased the amount of anti nausea medications I can receive. Odd. What changed in a week? I am now getting a chemotherapy that causes more nausea. However the insurance company medical director did an over ride and allowed my prescription to filled to 12 tablets and not the usual limit of 5. Now I have to get them to do the same for another medication. So I can get 30 and not 15.
The sad part for me is the other people who don't know the system and have no one on their side who knows how to help. Through +20 years in healthcare you learn the steps to question the system... working in the ER you learn whether it's worth questioning because your long term outcome doesn't change. When you are the patient you realise you don't know much at all and hope everyone is doing the right thing for you. But I am fortunate I don't have small children to care for or an elderly relative/spouse. I can take time from work to get over the worst part of the treatment. I cannot stop thinking how difficult this is for me but OMG I know I am lucky.
So the "Red Devil" is at work inside my body, with 5FU and Cytoxan. Someone from the Sisterhood I am now unfortunately a member of, recently went through this regime so with her honesty, kindness and knowledge she is guiding me through this. What would I do without her? When I post on FB or Blog I am also troubling her with my fear and questions. That Sisterhood is so strong and supportive may I gain the courage to be like the people before me that help me directly and indirectly. I have Survivors on my side and they are everywhere!
There are so many battles to fight when you have cancer and I hope to win many but ultimately I hope to win the war!
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